Responsible Health Data Usage

An Online Course

Screenshot of health data ethics map online course
The online course with questions, interactive map and video story.

In Switzerland, many universities and research institutions conduct health research using data and human biological samples. Recognising this, the Swiss Government initiated the external pageSwiss Personalised Health Network (SPHN), a nationwide initiative that supports the responsible use and exchange of health data and samples for research in Switzerland. The SPHN then published an external pageEthical Framework to ensure that scientific activities within the network meet adequate standards of ethical responsibility, promote the rights, interests and well-being of research participants, and generate public trust around the activities of the network.

We developed this ETH Zurich online course with the objective to help researchers become familiarised with this external pageSPHN ethical framework along with its key points about responsible usage of health data for research purposes. Through the use of a hypothetical example we aim to highlight how the knowledge in this framework can be applied to your research practice.

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