Ethics and Society in Personalised Medicine

We present an ethical framework to guide researchers and practitioners as they advance the goals of personalised medicine. Through a combination of empirical methods and normative analysis, we develop concrete recommendations to guide urgent policy decisions in this area.

Some of the project's activities are:

Part 1: Understanding the determinants for trust in digital health technologies
Who are the stakeholders when it comes to trust, and as what matters to them? What features or characteristics do these technologies need to have to engender trust?

Part 2: A large scale survey project to study public attitudes, expectations and concerns towards personalised health research that involves biobanking
What concerns do people have with regard to donating their health data and biological samples? With whom would they share their data? What motivates people to share, and what benefit do they find in participating in personalised health research?